Today I finally put my fingers to the iPad (which our loved family and friends bought us) while we are here in hospital. My pen and pad are running out, and it is time for me to get technologically communicative.
Firstly I want to apologise for not answering your sms's, phone calls and emails. We have appreciated everyone's kind thoughts, well-wishes, support and prayers. It means a lot to us knowing we have been in your thoughts. I have not felt like talking or seeing anyone during this most traumatic time in our Iives. My focus has been completely on Allegra and her care during all of her treatments and procedures.
If you want to follow Allegra's story of where we have been and what we are up to within the walls of RCH please check back and comment if you like.
Today my little darling has excelled herself once again and was a complete trooper in a dressing change on her PSIS (Posterior Superior Iliac Spine). She was heavily medicated on pain reliefs and Midazolam which has the similar effect of drunkenness, weird feelings for me seeing my baby in such a state but kinda cute, she had a great time on it!
Every day here is another day closer to us coming home - this is what keeps us going to the unknown date. Our routine is very out of routine. Allegra could be up all night vomiting (like last night) or she could sleep peacefully until 11am. This doesn't mean I can leave the room because I cannot risk her waking up when I am not there, amplifiying her sense of insecurity. Although, while my mum (Kay) aka Mar Ma (Allegras grandma) is here, I do get a break for the odd shower, coffee run and blog post. Bless you Mum for being there for Allegra and me. I could not do it without you, your love and commitment to us. We will be forever indebted to you.