Friday, 20 July 2012

Tests, Results, Tests, Results, Tests, Results

I lay in bed and think is it the last night before we are admitted back into hospital.
I cherish our time together at home in the luxury of peace and privacy.
I enjoy spreading flour and making hard scones with my baby.

I love the freedom of walking wherever we like whenever we like.

The fear of going back into hospital.

My poor little Allegra has been having tests after tests, once again.  Blood tests, Ecko Scans (heart ultrasound), liver and full abdomen ultrasounds. She had  a double bone marrow biopsy on Tuesday, anterior and posterior on her left side.  We were hours in recovery because my little treasure would not stop bleeding due to low platelets.
Everyone was extremely supportive saying to me we hope this will give us some answers.  I too want answers but only the right ones and no bad news.  I can't handle any more bad news.  Please no more.  Allegra has been through her fair share plus more and does not deserve anymore.  My little sweetheart has had enough and so have I.  Give us peace and leave us alone to enjoy our healing time together.  Let us heal.

Friday finally arrived and we took our time getting to hospital.  We didn't have a set appointment time, Dr Marty was coming off ward rounds to see us once we had bloods taken.
Little Allegra was not happy at all to have a finger prick even with her favorite pathologists there to distract.  I was thinking is this saying something or was I reading far to much into it and fearing re-admission.
Everyone commented on how well we look, I covered up my dark sunken eyes with a little makeup and of course Allegra looked gorgeous in her outfit and specially chosen hat.
Erin met us there, Mar Ma wasn't far behind us and daddy was waiting.  We nervously go in and Dr Martys carefully selected words were "so do you want the good news or bad news first?" This is how Marty rolls.  "just tell us I said, no games today".
Allegra does not have any Leukaemia.  Her marrow anterior and posterior showed less than 1% of cancer cells.  This is regarded as Remission if there is less than 5%.
In her marrow there is fibrosis and a lot of osteoblasts (bone cells).  Marty's hypothesis is that Allegra is trying to recover from the fractures and leukaemia and her little body is producing a lot of osteoblasts to repair the bone trauma that was caused.
To be honest I could not absorb much more after that, I recorded in my mind the news I wanted to know and after that I only saw Dr Marty's mouth move.
Euphoric is the feeling that I was overwhelmed by.
I looked at mum and her shoulders sunk down, her eyes filled with tears and she turned to her little munchikan Allegra and said my clever little girl.  I remember kissing and rubbing my irritable baby girls back and looking over to Erin and with a daze and said thank god.

There is still an unknown reason at this stage  why Allegra's liver function is far too high.  She has had blood tests now looking for infection, virus or bacteria.  Her original Mucor wound at the back has started to breakdown so maybe the liver is relative to this.  We ave an appointment with the Plastics Team on Monday morning along with a Day Oncology appointment to get liver results.

We left the hospital and Allegra and I came home to, just enjoy ourselves, enjoy togetherness at home, enjoy the result, enjoy my little family and my family who Allegra and I love so much.  My loving mum (Allegras Ma Mar), my gorgeous brothers, the best sister in laws and my beautiful nieces and nephew shared the excitement with even my beloved youngest brother coming over  from Perth to see his very clever niece. 
My ever so thoughtful Sissy and brother sent us 3 girls a hamper each with luxury, pampering items, books and a hoot hoot (owl night light), which Allegra adores.

1 comment:

  1. Excellent blog very nice and unique information related to Allegra. Thanks for sharing this information.